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Baby is healed with first personalized gene-editing treatment

(www.nytimes.com)
1160 points jbredeche | 1 comments | 15 May 25 18:06 UTC | HN request time: 0.233s | source
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ecshafer ◴[15 May 25 19:58 UTC] No.43998721[source]▶
As a father, the idea of being told my 1 week old baby is going to die would be my worst nightmare. The fact these doctors and scientists saved this childs life is a monument to modern medical science. This is absolutely insane. Hopefully the child doesnt need a liver transplant, but this is a great leap forward.
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efilife[dead post] ◴[15 May 25 21:41 UTC] No.43999602[source]▶
[flagged]
morepedantic ◴[15 May 25 22:45 UTC] No.44000121[source]▶
Edgy! No one has ever considered the mortality of their children ever, or contemplated the difference between death before and after the realization of potential. Wow!
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efilife ◴[15 May 25 23:24 UTC] No.44000364[source]▶
Genuinely don't know why this is edgy. I was trying to understand his logic
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cluse ◴[15 May 25 23:42 UTC] No.44000447[source]▶
Having a child predecease you is one of the worst things that can happen to a person in general. This is a common sentiment in humans. The strange thing is that you mentioned you're trying to follow "logic." This is not logic. These are emotions.
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efilife ◴[16 May 25 00:10 UTC] No.44000594[source]▶
I understand this. My question arose from the fact that it seems like he only cares about the child dying before him, not the child's death overall. It was

> the idea of being told my 1 week old baby is going to die

not

> the idea of my child dying

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1. philsnow ◴[16 May 25 12:20 UTC] No.44004539[source]▶
It’s less of

> my baby is going to die, woe is me

and more of

> have I failed my baby so much as a parent that he won’t even grow to adulthood (much less have a wonderful, happy life)

It’s not exactly a rational feeling; it’s not like this baby was going to die through lack of parental effort or care or anything else that the parents have any real control over, so it’s not like they could have done anything differently.

Nonetheless, it can make you feel like an utter failure of a parent. To some people (I admit, not everybody), that is absolutely crushing.