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747 points porridgeraisin | 3 comments | | HN request time: 0.612s | source
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ljosifov ◴[] No.45064773[source]
Excellent. What were they waiting for up to now?? I thought they already trained on my data. I assume they train, even hope that they train, even when they say they don't. People that want to be data privacy maximalists - fine, don't use their data. But there are people out there (myself) that are on the opposite end of the spectrum, and we are mostly ignored by the companies. Companies just assume people only ever want to deny them their data.

It annoys me greatly, that I have no tick box on Google to tell them "go and adapt models I use on my Gmail, Photos, Maps etc." I don't want Google to ever be mistaken where I live - I have told them 100 times already.

This idea that "no one wants to share their data" is just assumed, and permeates everything. Like soft-ball interviews that a popular science communicator did with DeepMind folks working in medicine: every question was prefixed by litany of caveats that were all about 1) assumed aversion of people to sharing their data 2) horrors and disasters that are to befall us should we share the data. I have not suffered any horrors. I'm not aware of any major disasters. I'm aware of major advances in medicine in my lifetime. Ultimately the process does involve controlled data collection and experimentation. Looks a good deal to me tbh. I go out of my way to tick all the NHS boxes too, to "use my data as you see fit". It's an uphill struggle. The defaults are always "deny everything". Tick boxes never go away, there is no master checkbox "use any and all of my data and never ask me again" to tick.

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1. calmbonsai ◴[] No.45065005[source]
I don't think you understand how...humanity works?! Is this deliberate parody?

Abuse of medical data is just the tip of the iceberg here and, at least in the states, privatized healthcare presents all sorts of for-profit pricing abuse scenarios let alone nasty scenarios for social coercion.

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2. ljosifov ◴[] No.45072994[source]
You know little about me, so it's better to assume less, no? My personal experience with medical data specifically is, that I would have been harmed by obstacles to data sharing that the UK medical system has in place, having not been familiar with computers and tech enough to anticipate the ways lack of data sharing will lead to outcomes undesirable to me. I wrote about that in a comment here https://news.ycombinator.com/item?id=45067219
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3. calmbonsai ◴[] No.45088237[source]
I read you comment and I'm sorry you had to jump through all the hoops just to get copies of your medical records.

I dealt with some of that while being a foreign national working in Düsseldorf a few years back.

Medical care is definitely screwed up in the states, but getting my basic test results and emailing my doctor has always been a straightforward and rapid comms loop.