What really struck me was that 1) the midwestern neurologist seemed to have never seen symptoms like mine, whereas the Stanford neurologist had seen them often, and 2) the Stanford neurologist linked it to poorly managed anxiety. At the time I was five years into a data scientist role at a big tech company in the bay area (now it's two year later - the symptoms improved somewhat but are still there). I definitely had burnout and mental health problems and was in denial about them ("I have all these great perks, how could my work be causing my mental health issues?").
The best thing you can say about BFS is it isn't physically painful; I am definitely not equating it with the chronic pain issues that others have described on this thread, which seem much tougher. It's another one of those things that has no known cure (diet / lifestyle / mental health improvements help somewhat), is only vaguely understood ("your nerves are oversensitive"), is linked to mental health issues, and seems overrepresented in the bay area (maybe in other tech/urban centers too, I don't know). Two years in, I don't have any answers, just wanted to share in case it's helpful to anyone.