U.S. autism data project sparks uproar over ethics, privacy and intent

One thing this will do is disincentivize high functioning autists from identifying themselves as autists, which is a very good thing IMO. Just look at this channel https://www.youtube.com/@NationalAutisticSoc/videos. There is a lot of survivor-ship bias on this channel towards high functioning autists who can talk in front of a camera.

Just to give an idea to those not familiar with the difference between high functioning and low functioning autism, high functioning autists face problems like not being able to communicate properly some of the time, and low functioning autists face problems like not even being able to tell their caretaker which part of their body is in pain, or which kid in the group punched them.

Edit: The National Autistic Society is UK based but the situation is not that different in other countries.

About a fourth of kids diagnosed with autism have IQ at 75 or below.

How well would your IQ score reflect your actual intelligence if you were to take an IQ test in a language you have trouble understanding and expressing yourself with?

It's well agreed that multiple factors contribute to IQ score. What I'm trying to convey is how much burden is predicted by the autism diagnosis.