U.S. autism data project sparks uproar over ethics, privacy and intent

One thing this will do is disincentivize high functioning autists from identifying themselves as autists, which is a very good thing IMO. Just look at this channel https://www.youtube.com/@NationalAutisticSoc/videos. There is a lot of survivor-ship bias on this channel towards high functioning autists who can talk in front of a camera.

Just to give an idea to those not familiar with the difference between high functioning and low functioning autism, high functioning autists face problems like not being able to communicate properly some of the time, and low functioning autists face problems like not even being able to tell their caretaker which part of their body is in pain, or which kid in the group punched them.

Edit: The National Autistic Society is UK based but the situation is not that different in other countries.

This will unpopular, but I would recommend that anyone who can manage it to avoid any sort of formal psychological diagnosis. Unless you strictly need it for medication, it is always something which could potentially drag you down. Anyone can use the DSM (alongside an actual doctor) to get something of an "informal diagnosis" which will help them understand themselves better and to work with a doctor to form coping strategies. The formal diagnosis could potentially be used against you in the future, whether it's related to autism or not. For some people as well, the formal diagnosis does not seem to help and instead feels like a modern form of astrology; it becomes part of their internal view of themselves, and they trap themselves within the boundaries of their diagnosis.