U.S. autism data project sparks uproar over ethics, privacy and intent

Aktion T4 next? This is a dark dark road.

I suspect the US will become like Germany in the next few decades where the paranoia about handing any data over is justifiably high. I hope this burns the unethical side of the tech industry to the ground. It deserves it.

I agree generally but I hope we make as much real anonymous health data available for research.

Google is certified and runs the biggest medical database with (I believe without googling this) the biggest hospital operator in the USA.

I have a condition which is rare enough that it doesn't get enough funding and data is missing

> Google is certified

That doesn't matter _at all_ when the government comes knocking at Google's door - in the best case, they have a subpoena that can at least be appealed afterwards, in the worst case it's DOGE teens backed by a bunch of heavily armed guys in camouflage.

Indeed. No data is safe or secure in such environments.

This has become an issue big enough that the US company I work for is actually removing data from US cloud providers to make it harder to get at. The European divisions have started data sovereignty projects because it's now a principal risk.

I'm out of the cloud as well.

Ha. My company was advising having a burner phone when traveling to US in a company-wide meeting. There has been something of a shift.