←back to thread

U.S. autism data project sparks uproar over ethics, privacy and intent

(www.washingtonpost.com)
254 points perihelions | 1 comments | 27 Apr 25 09:23 UTC | HN request time: 0.21s | source
Show context
ohgr ◴[27 Apr 25 09:58 UTC] No.43810704[source]▶
Aktion T4 next? This is a dark dark road.

I suspect the US will become like Germany in the next few decades where the paranoia about handing any data over is justifiably high. I hope this burns the unethical side of the tech industry to the ground. It deserves it.

replies(4): >>43810747 #>>43810754 #>>43810948 #>>43811118 #
Tireings ◴[27 Apr 25 10:08 UTC] No.43810747[source]▶
I agree generally but I hope we make as much real anonymous health data available for research.

Google is certified and runs the biggest medical database with (I believe without googling this) the biggest hospital operator in the USA.

I have a condition which is rare enough that it doesn't get enough funding and data is missing

replies(3): >>43810757 #>>43810758 #>>43810860 #
1. croes ◴[27 Apr 25 10:31 UTC] No.43810860[source]▶
Didn’t they already show that these data can’t really be anonymized if it should still be useful?