This isn’t a question of lived experience. It’s simply not the case that the FDA approves all treatments or that an FDA approved treatment is necessarily justified in some particular case.
I do agree that a lot of people seem to believe that’s how it works. There’s some objectively correct treatment, the doctors uncover what it is, and I have an unconditional right to get that treatment no matter what it costs. But no healthcare system does or could work that way. You have to consider tradeoffs and control costs somewhere.
You can build a system that makes it seem that way to the patients; that’s why I like Kaiser. In my opinion it’s more user friendly that way. But the tradeoff is that cost controls are imposed directly on what doctors are willing to prescribe. There’s many stories of Kaiser doctors refusing to prescribe expensive treatments that other doctors would, because as a matter of policy they believe some lesser treatment would be sufficient.